Resource Library

Welcome to the NewSTEPs resource library! This tool incorporates all resources archived on the NewSTEPs website, which can be filtered below by disorder, type and topic. Submissions of additional resources are encouraged and accepted as the library continues to grow. Please direct any submissions to newsteps@aphl.org.

Saved Resources

All Resource

All Resources

Reports

Newborn Screening Health Information Technology Interviews Summary Report 2016-2017

May 06, 2020

Reports

X-Linked Adrenoleukodystrophy (X-ALD) Summary Data Report (De-identified)

December 02, 2016

Reports

Critical Congenital Heart Disease (CCHD) Technical Assistance Workgroup Report

December 01, 2016

Reports

NewSTEPs Timeliness Report to Government's Accountability Office (GAO)

September 07, 2016

Reports

Mucopolysaccharidosis Type I (MPS I) Survey Data Summary Report (De-identified)

January 02, 2016

Reports

Percent of National Births Screening for All Disorders

May 08, 2015

Reports

Special Issue: 2012 Congenital Malformations Surveillance Report: A Report from the National Birth Defects Prevention Network

December 01, 2012

Reports

The Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) 2012 Annual Report

January 01, 2012