NewSTEPs National New Disorders Meeting (2018)

Date: June 20 - 21, 2018
Location: Washington Marriott at Metro Center

Meeting Purpose:

The purpose of this meeting is to convene newborn screening personnel from all state newborn screening programs and pertinent partners and stakeholders to discuss the challenges, share experiences and identify strategies for moving all programs toward full implementation of newborn screening for Pompe, MPS I and X-ALD. 

 

Meeting Objectives:

  1. Discuss current status of as well as future (what's next) for MPS I, x-ALD and Pompe newborn screening in the United States. 
  2. Discuss decision points, barriers, unintended consequences to address in preparing for and implementing population screening for new disorders.
  3. Identification and sharing of tools/resources used by newborn screening programs to prepare for and conduct screening for new disorders.

 

For information regarding this meeting, please email Kshea Hale at kshea.hale@aphl.org.

 

This project is supported by the Health Resources and Services Administration (HRSA) of the US Department of Health and Human Services (HHS) under grant number # UG9MC30369 New Disorders Implementation Project for $4,000,000. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the US Government.

Meeting Agenda
Meeting Summary