New York-Mid-Atlantic Consortium (NYMAC): Newborn Screening (NBS) for Adrenoleukodystrophy (ALD) Symposium Talks
The New York - Mid-Atlanitc Consortium (NYMAC) has posted the following Newborn Screening (NBS) for Adrenoleukodystrophy (ALD) Symposium Talks on the NYMAC website:
Diagnostic Testing and History of Adrenoleukodystrophy
- Ann Moser, BA;
ALD Management and Treatment
- Gerald Raymond, MD;
Genetic Counseling Considerations of ALD Newborn Screening and Differential Diagnoses
- Beth Vogel;
New York State ALD Laboratory Protocol
- Joeseph Orsini, PhD;
Protocol for Diagnosis and Management Guidelines
- Sarah Bradley, MS, CGC;
Parent and Patient Perspectives
- Spenser Barsh ;
Status of ALD Screening in New Jersey
- Scott Shone, PhD;
Parent and Patient Perspectives
- Elisa Seeger;
Long-term Follow-up and Educational Materials Group Discussion
- Beth Vogel, MS, CGC;
Review NYS ALD Outcomes
- Michele Caggana, Scd, FACMD;
Status of ALD Screening in California
- Bob Currier, Phd